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Parental disclosure of ASD diagnosis to the child
Title
Parental disclosure of ASD diagnosis to the child: A systematic review.
Creator
Smith, Isaac C., Edelstein, Jeffrey A., Cox, Bradley E., White, Susan W.
Abstract/Description
Despite increased rates of diagnosis of autism spectrum disorder (ASD) in recent years, literature examining when and how parents of newly-diagnosed youth disclose their diagnosis to them is scarce. Given the increasing number of newly-diagnosed individuals, an exploration of the effects of disclosure on children with ASD is warranted. We conducted a systematic review to identify articles describing the process of disclosing a diagnosis of ASD from the perspective of children, parents, or...
Show moreDespite increased rates of diagnosis of autism spectrum disorder (ASD) in recent years, literature examining when and how parents of newly-diagnosed youth disclose their diagnosis to them is scarce. Given the increasing number of newly-diagnosed individuals, an exploration of the effects of disclosure on children with ASD is warranted. We conducted a systematic review to identify articles describing the process of disclosing a diagnosis of ASD from the perspective of children, parents, or both. The current review identified five articles reporting qualitative data on the disclosure process. Across studies, most parents were found to have disclosed ASD diagnoses to their children by adolescence, with children and parents exhibiting a variety of reactions. Concerns frequently identified by children and parents included time taken to process the emotional impact of diagnoses, delay between parents receiving diagnoses from clinicians and delivery of those diagnoses to children, concern that the ASD label would result in stigmatization, and the sense that an individual’s past behaviors or symptoms were well-explained by the new diagnosis. Identification of these potential problems may serve as an initial step to inform the development of best-practice guidelines for parental disclosure of ASD diagnoses to youth and further research on this understudied part of the diagnostic process.
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Date Issued
2018-02-02
Identifier
FSU_libsubv1_scholarship_submission_1518537263_72b43447, 10.1080/23794925.2018.1435319
Format
Citation
Exploration of Actionable Insights Regarding College Students with Autism
Title
An Exploration of Actionable Insights Regarding College Students with Autism: A Review of the Literature.
Creator
Cox, Bradley E., Nachman, Brett Ranon, Thompson, Kerry, Dawson, Steven, Edelstein, Jeffrey A., Breeden, Chase
Abstract/Description
A large and growing population of students with autism is increasingly pursuing higher education. Yet, the field has a remarkably small literature base from which to glean actionable insights that might enhance postsecondary success for this population. Our examination of 13,000 items published in sixteen journals over a sixteen-year period revealed only 21 articles on the topic; none were published in mainstream higher education journals. Our explication of this literature maps the contours...
Show moreA large and growing population of students with autism is increasingly pursuing higher education. Yet, the field has a remarkably small literature base from which to glean actionable insights that might enhance postsecondary success for this population. Our examination of 13,000 items published in sixteen journals over a sixteen-year period revealed only 21 articles on the topic; none were published in mainstream higher education journals. Our explication of this literature maps the contours of the emerging body of literature on college students with autism, uncovers problematic patterns within that literature, identifies important questions that remain unanswered, and provides explicit guidance for future research on the topic.
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Date Issued
2020
Identifier
FSU_libsubv1_scholarship_submission_1574085173_46a339fe, 10.1353/rhe.2020.0026
Format
Citation
College experiences for students with Autism Spectrum Disorder (ASD)
Title
College experiences for students with Autism Spectrum Disorder (ASD): Personal identity, public disclosure, and institutional support.
Creator
Cox, Bradley E., Thompson, Kerry, Anderson, Amelia, Mintz, Amanda, Locks, Taylor, Morgan, Lindee, Edelstein, Jeffrey, Wolz, Abagail
Abstract/Description
A large and fast-growing population of individuals with Autism Spectrum Disorder (ASD) are completing high school with reasonable expectations for postsecondary success. However, without empirical literature to guide them, college educators are likely ill prepared to provide appropriate support for these students. Drawing from personal interviews with a diverse group of students with autism, the current study (1) amplifies these students' voices, (2) describes tensions between their public...
Show moreA large and fast-growing population of individuals with Autism Spectrum Disorder (ASD) are completing high school with reasonable expectations for postsecondary success. However, without empirical literature to guide them, college educators are likely ill prepared to provide appropriate support for these students. Drawing from personal interviews with a diverse group of students with autism, the current study (1) amplifies these students' voices, (2) describes tensions between their public and private identities, (3) outlines the academic, social, emotional, self-advocacy, and communication challenges they face in college, and (4) proposes both general principles and specific practices that could be leveraged to facilitate postsecondary success for students with autism.
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Date Issued
2017
Identifier
FSU_libsubv1_scholarship_submission_1460660561
Format
Citation